Dr Bhairoon Singh Bhati, the secretary of SKSN, said: 'Lakshmi is a special case for us. She's a very challenging case because you can never tell from her medical history when she might next fall ill.
'Her scoliosis is an example of the problems Lakshmi faces because we had no way of knowing she would develop a curvature of the spine.
'Similarly, despite all the problems she still faces we have no way of knowing what may crop up in the future.
'The biggest difficulty caring for Lakshmi is that she's a unique case - there's never been a child like her before so we have nothing to refer back to.'
Under Dr Bhati's guidance Lakshmi has started school, joining her elder brother as the only members of their family to ever receive an education.